Well, we recently had an in home apt. for William (who is going through the same early stage program that Owen did), and while talking to our OT, she pointed out that there are some major red flags for William possibly being autistic as well. I was proud of myself for not crying until she left. And so, the next step is the official testing. There are 2 options for us at this point. They have Clinical Services that are available to us, where Zac and I would interview with them for 2 hours (answering questions and things like that) and then there is a week of testing and then two weeks later, we would know. Although, the initial interview would have to wait until Oct. 25th. (Their first availability). Our other option is a specialist in Ogden. Hour interview and then your life has a big change in front of it.
It is really hard to describe what this all feels like. Owen and William are soooooo different and so I just thought we wouldn't be doing all of this again. But, William's OT pointed out that when parents have one autistic child, that is what autism looks like to them. That is the norm and so anything different can't be autism. I had never thought about that. So, I started watching William very closely and started seeing the signs I maybe hadn't wanted to see. For example, he doesn't respond to his name, and won't sit on our laps unless he's tired or sick, he says mama sometimes, but other than that he is nonverbal, he isn't very interested in people...however, he and Owen are very different. Owen would play with the same toy for hours by himself, wouldn't want to be held when he got hurt and those sorts of things and William is the opposite. He loves to be held and snuggled with and is very aware of us and where we are.
All I know is that these are our children and just because it's hard and financially draining, there is nothing Zac and I wouldn't do for our boys. We love them and early intervention is the key and so, we will do the Up to 3 program, OT and Speech apts, meetings with specialist, classes, and anything else that we think will help our kids communicate and have happy, healthy, and fulfilling lives. It's interesting, I question my parenting style all the time, but lately I really think like I am doing everything that I can. And I am ok with that. Zac has been nothing but supportive and loving. He always looks for opportunities to show the kids new toys and games and just gives them unconditional love. I just have to say how lucky I am to be William's mother. He is giggly and happy and loving and warm and I can just tell that he is one in a million. I will keep everyone posted on the timeline for our testing and the results.
Jenny, you are such a great mom. I know this because you love your sweet boys so much. I read a book recently based on a true story but also some fiction about a teenager with autism and i just thought of you and cried. Your boys are so special and I know they love you.
ReplyDeleteJenny, I love you guys! I'm so glad I ran into you the other day. Just being around you makes me happy and THAT is such an amazing characteristic you have. Your boys are adorable no matter what and I hope you can get the answers that will help you. Love ya!!
ReplyDeleteJenny, I wish I lived closer because I would love to give you a great big hug right now. I don't know the words to say or how to say what I feel in my heart, but I want you to know that I think the world of you. One thing I have loved and admired about you since day one is your spirit; your spirit of love, compassion, happiness, the spirit of Jesus Christ that LIVES in you. You are an amazing mom and you teach your boys so well. When I see pictures of them, I see the light of Christ that you are instilling in them. I love you dearly and pray for you often!
ReplyDeleteJenny my heart goes out to you! We will put your names on the prayer roll so you can have some extra angels helping you through this! Love you girl!
ReplyDeleteYou are super mom! Seriously! I have so much respect for you & Zac & by reading your blog I can tell what amazing parents you are. Good luck with the next few weeks & I know we are thinking about you guys.
ReplyDeleteOh Jenny! My heart just breaks for you! You are such an amazing mom to have been blessed with such sweet boys. I have a friend with 2 autistic sons who is always willing to talk to other moms, so if you want, I can pass your info on to her. Good luck! And let's plan a girls day out soon!!!
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