Zac and I have talked a lot about whether or not to post this on our blog, but it feels like the right time to do so. Owen has autism. I thought I would talk about how we found out and what we've been doing to help him and how we feel about it and just fill you in.
How we found out:
I took Owen in for his 18 month apt and there was a survey/form that you fill out that indicates what your child can and cannot do at that age. As I met with the pediatrician, he discussed with me concerns that he had about Owen's current development. He was very sensitive about the subject, but said that with what I was telling him and what he was seeing in Owen, we should look into getting him tested. I sobbed the whole way home and came home and told Zac about it and we both just fell apart. We didn't know much about it or what it meant or what to expect, or even what end of the spectrum he was on. We were terrified and testing took a lot longer than we expected to arrange. So, in the meantime, we just shut down. That's all we could think about and we were so scared of all of it's implications for our son that we love so much.
Coping:
Like I said, we shut down for a couple of weeks and there was a lot of tears and frustration and fear and anxiety. We could hardly sleep and we were both a mess for awhile. However, we prayed that things would get easier and that we would know how to handle it. We felt at peace a little more, but we didn't feel like it was something that was going to go away, we just felt strengthened to be able to handle it. During this time, we both got multiple priesthood blessings. We have a good friend in our ward that gave Zac a blessing in the beginning and the spirit was very strong and I was so grateful that both of us were able to enjoy the blessings of the priesthood. It also made me grateful for the blessings that Zac has given me and the courage I've received from that. We have been so much closer through all this. He is the one person that I can vent to and he completely understands. He is right there with me and we have been through good days and bad days together. Our prayers have been more sincere, and we have been able to see so many blessings in this period of time.
Testing:
Soooo many tests. It is very difficult in the beginning to have multiple people observe my son and all be in firm agreeance that basic skills and communication milestones are not where they should be. As a mother, I think that my son is brilliant and wonderful and believe me, none of these tests changed my mind, but at times, it made it hard to accept these struggles he was inevitably having. We have met with 2 doctors that have diagnosed him with mild to moderate autism, we have also met with occupational therapists, speech therapists, case workers, and again with our pediatrician. Let me just clarify that I am so grateful for these programs and wonderful people that he has worked with. He is now taking a class for development, does multiple in home visits with 3 different specialists, meets with another occupational therapist outside our home and I am currently taking a class for us as parents to learn more about how to communicate with Owen. We also go to community activities and we are really happy with his progress.
Life:
Oh, how our life has changed in the last few months. When we were deciding whether or not it was the right time to have another baby, we debated about when. I got a really strong impression that this baby needed to be here now and that we shouldn't wait any longer. We followed that prompting and within months we found out about Owen. We both agreed that had we found out about Owen earlier, we would have waited to have another baby. We are so grateful for Will. We can already tell that they are going to be good for each other. We love our sons! Well, that leads us to the last few months. I can't even begin to tell you how difficult it was to be pregnant and uncomfortable and have a meeting for Owen at least three times a week. It was a very difficult time for me and I just kept thinking, I just want to play with Owen again. But somehow we survived and we are making it day by day. Thank goodness for family, good friends, VT, and ward members.
Owen:
The amazing thing about Owen is that for the most part, he is extremely mellow and happy. He hates being restricted (like reading a book on our lap) or being held for very long. This is hard for me as his mom to not be able to console him when he's sad or hurt. He doesn't talk yet, he will occasionally say da da when he gets excited, and he likes to babble, but his words have no real meaning and he doesn't have the attention span to learn sign language yet, although it doesn't keep us from trying. We work constantly on eye contact, and he is really good at grabbing our hands and leading us places. We are so proud of him and the good happy boy that he is. His smile just melts us and nothing makes us happier than when he hugs us randomly and when we get to hear his sweet little laugh. He gives us so much joy and we know that he understands a lot of our words and so we are just on his time table and that is the way he has always been. He has to do things on his terms and in his own timing. He is one amazing boy! He loves to smile and laugh and he has a lot of good skills that he is developing. We have him in every program available and are very optimistic about where we're heading.
I think I just wanted to have a place to express my good days, hard days, and maybe even help someone else that may be going through something similar. We have been so blessed to see the Lord's hands in our lives and know that we lucky enough to be Owen's parents and give him all our love and encouragement. We know that we are watched over and that Owen has a great life ahead of him. We love him so much!!!
We need to get together and talk. I have been through this process!!
ReplyDeleteJenny, Owen is so lucky to have you and Zac as his parents. What an amazing little guy you have. Heavenly Father has so much in store for him and for you. Please keep in contact with me as I know there will be hard times ahead but when you see the progress he makes through his different therapies your heart will swell with so much joy and happiness! Love to you and your family!
ReplyDeleteJenny I know that you and Zac will do what is best for Owen and that he was sent to your family for a reason. You may have a long struggle ahead and I am sure you will be lead to the therapies and to the professionals that will help Owen to progress to his full potential. Thank you for sharing your thoughts and may your family be blessed with things you need at this time.
ReplyDeleteour prayers are with you guys!
ReplyDeleteThanks for sharing Jenny, you just never know what people are going through. You do an awesome job as Owen's mommy. :) Even though we may have different trials, it is always nice to see someone else's faith in action and draw on their strength and vice versa. Thanks for being a good example to me, your home will be blessed with his special spirit in it.
ReplyDeleteThanks for sharing. I know when life is not ideal it's hard to just put it all out there for the world to see. But what a great way for more support! Hang in there and keep smiling that beautiful smile of yours!
ReplyDeleteYou are amazing parents. If you ever need anything let me know! You have adorable little boys!
ReplyDeleteJenny, you are always so positive and I know Owen will have a great life because of you :)
ReplyDeleteJenny, I know that it took a lot of faith and courage to post this on your blog. Through this one post, you have touched every heart of every person that read it. You have already begun to bless people through your trial.
ReplyDeleteYou are the perfect parents for Owen and he is so blessed to have such a wonderful life ahead of him. I cannot imagine how hard it must get at times, but know that we are all here for you and the only way to get help is to let people know how you are really doing. Your testimony and faith are a great example.
I love you and admire you so much. Thanks for sharing your story.
Your awesome and Owen is freaking cute! You can do it and I know that Owen is super lucky to have a mom like you. I have a cousin that has a little girl with autism and she knows everything. She lives in ogden but is here monday-friday because her little girl Ivy goes to utah state for school. they have the BEST program for Utah. If you want I we can setup a play date and we can all meet at my house. She is amazing! If you need anything let me know. Two kids are hard. These people that say it is so easy.......I think they lie :) good luck!
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